Living Donor Support Program Frequently Asked Questions (FAQs)
1. How is the New York State-Living Donor Support Program funded?
The New York State-Living Donor Support Program is funded by the New York State government. This program was established through legislation and signed into law by Governor Kathy Hochul aimed to support living organ donors by providing direct reimbursements for medical and associated expenses, including lost wages and childcare costs.
2. What if funding runs out in a state budget year (April 1-March 31)? Will reimbursements still be paid to the donor who has been accepted into the Living Donor Support Program?
A. Living Donor Support Program funds are all subject to budgetary appropriations and may be subject to be delayed until the next budget year.
3. What are the eligibility requirements?
The donor and ultimate intended recipient must be New York State Residents.
4. Who developed the eligibility criteria?
The eligibility criteria were developed through New York State legislation and regulations.
5. If the donor and recipient are both New York State residents but the surgery takes place at a Transplant Center outside of New York State is the living donor still eligible for the Living Donor Support Program?
Yes, as long as both the donor and the recipient are both New York State residents the living donor qualifies for the program. Out of state surgeries does not disqualify them from the program.
6. What expenses are covered by the New York State-Living Donor Support Act?
Living donors can apply for reimbursement of travel expenses, lost wages, child/dependent adult/elder care expenses and costs of medications and medical care associated with the living donation process.
7. What is the maximum New York State-Living Donor Support Program reimbursement for qualifying expenses during the living donation process for the donor and support person?
The maximum total amount for reimbursement is $14,000 (fourteen thousand dollars) for any single living donor
8. How many donors can the New York State-Living Donor Support Program help on a recipient's behalf?
A. Two donors at a time with a maximum of 5 donors evaluated.
9. If I am awarded assistance from the New York State-Living Donor Support Program, may I also use a tax credit on my New York State income tax for the living donation?
Expenses covered by the New York State-Living Donor Support Program cannot be claimed as donor out-of-pocket expenses and cannot be used as a deduction or credit on income tax returns.
10. Who submits the application to the New York State-Living Donor Support Program?
A transplant center professional (usually a living donor advocate, social worker, nurse coordinator or financial coordinator) will submit the application on behalf of the prospective living donor. The New York State-Living Donor Support Program cannot accept applications directly from patients.
11. What is the application process?
The living donor, the transplant center, and the recipient should:
- The transplant center will screen and determine eligibility criteria.
- The living donor and recipient will complete the New York State-Living Donor Support application, sign attestations and attach proof of residency.
- The application is returned to the transplant center staff for completion and review.
- The transplant center completes a third-party payer review form.
- The transplant center submits the application and all required forms to the New York State-Living Donor Support Program via secure file transfer in SendVault.
12. Where can I find the application and worksheets?
Ask your transplant center for access to the New York State-Living Donor Support Program application. You can also find them on the New York State Department of Health Living Donation website at Living Donation.
13. When does the application need to be submitted?
Applications for consideration need to be submitted prior to the donor's surgery taking place.
14. Who reviews the applications, checks eligibility, and either approves or denies program participation and funding reimbursement?
Staff of the New York State Department of Health Living Donor Support Program review each application, approving or denying them based on the eligibility criteria. The decision is not subject to appeal.
15. Why must the living donor, Transplant Center, and recipient sign New York State-Living Donor Support Program attestation forms?
It is illegal to buy and sell organs in the United States. The New York State-Living Donor Support Program requires the living donor and transplant candidate (recipient) sign a statement (attestation form) that includes affirming they have been informed of what constitutes "valuable consideration" and that they are in full compliance with NOTA. Section 301 of the National Organ Transplant Act of 1984 ("NOTA" or "Act"), entitled, "Prohibition of organ purchases," imposes criminal penalties of up to $50,000 and five years in prison on any person who "knowingly acquire(s), receive(s), or otherwise transfer(s) any human organ for valuable consideration for use in human transplantation if the transfer affects interstate commerce." 42 U.S.C. § 274d (2000). The attestation forms also authorize the transplant center to provide information about the donor and recipient to the New York State-Living Donor Support Program.
16. If I am participating in a paired exchange program, can I apply for the New York State-Living Donor Support Program?
Yes, if the ultimate recipient is a New York State resident you will be eligible for the program.
17. If I am an anonymous, non-directed donor, can I apply for the New York State-Living Donor Support Program?
An anonymous, non-directed donor is someone who donates an organ without choosing who receives the organ. The legislation for inclusion and eligibility in the program is based on both the donor and recipient being a New York State resident. If the anonymous or the non-directed donor does not know the recipient, they are not eligible for the program.
18. Are bone marrow donors eligible for funds through the New York State-Living Donor Support Program?
No. The New York State-Living Donor Support Program includes individuals considering becoming a living donor of a kidney, liver, or other medically approved lifesaving organ as defined in public health law section 4360.
19. How long does it take to get a response on program eligibility once the application is submitted?
Program eligibility determination once the application submitted is 10-15 business days. If the recipient needs an emergent liver transplant and is unable to wait the 10-15 business days emergent approval can be granted.
20. What if I was a living donor after the law was passed but prior to the program being implemented?
Eligible living donors who made their organ donation only during the period of April 1, 2023, and January 1, 2026 (Legacy Group) may apply with supporting documentation within three months of program launch for program consideration.
21. What happens if I use funds from the New York State-Living Donor Support Program and am unable to donate?
Participants who do not ultimately make a living donation through no decision or judgment of their own, after incurring eligible expenses during the evaluation process, will be reimbursed for these expenses.
22. What is the reimbursement process?
All participants will have a profile created in the New York State Financial System (SFS). For each reimbursement requested (eligible expenses can be submitted together during each phase of care) a claims form and supporting documentation and/or receipts of the expense(s) will be sent to the Living Donor Support Program for submission through SendVault.
23. Can the New York State-Living Donor Support Program pay for any associated costs of a support person(s) for the living donor?
Yes, support person(s) will be provided a flat rate of $100 per day (up to 20 days total) to accompany the living donor during the living donation process.
24. How many trips can the New York State-Living Donor Support Program cover for a donor or person considering donation?
All eligible travel, lodging and meal expenses will be paid, with verified receipts, up to the outlined General Services Administration (GSA) rates or the maximum value of the receipts. Total reimbursement for all eligible expenses is limited to $14,000 (fourteen thousand dollars).
25. How does the New York State-Living Donor Support Program define income for wage reimbursement?
Donors submit pay stub from the previous 4 weeks with their lost wages application. Other factors affecting reimbursement needs, like availability of short-term disability, will be considered.
26. How does the New York State-Living Donor Support Program calculate wage reimbursement?
Wages will be calculated on an hourly basis consistent with a paid time off model.
27. How can self-employed donors and independent contractors document their wages for reimbursement?
Donors who are self-employed or independent contractors can submit their most recent:
- Federal income tax return with Schedule C or Schedule K-1
- IRS form 1099
- Earnings statement or tax summary from a company they do contract work for (like Uber or Lyft)
- Profit and loss statement generated by accounting software
28. Can the New York State-Living Donor Support Program help donors who are unemployed or furloughed with their lost wages?
No, the New York State-Living Donor Support Program will only reimburse wages a donor would have earned if they did not donate an organ.
29. Can the New York State-Living Donor Support Program help donors who are paid cash or "under the table" with their lost wages?
No, the New York State-Living Donor Support Program can only reimburse documented wages that are reported to the IRS.
30. How does the wage reimbursement work for donors who have paid time off or short-term disability benefits?
The New York State-Living Donor Support Program will reimburse the economic value of sick, or vacation days expended. A donor is not required to utilize their paid time off before requesting wage reimbursement from the program but will need to check with their employer to ensure the employer allows unpaid leave of absence before utilizing their paid time off. If the donor's short-term disability benefits do not cover all of their normal wages lost the New York State-Living Donor Support Program will reimburse the remaining, unreimbursed portion of their wages.
31. Are lost wage reimbursements taxable?
A Substitute W-9 form will be provided for all program participants when the create a Statewide Financial System (SFS) account. The lost wage reimbursement is income and may be subject to federal and/or state income tax reporting. It is the donor's responsibility to contact a qualified tax advisor to determine tax liability. The New York State-Living Donor Support Program is not responsible for any tax consequences related to wage reimbursement.
32. What dependent care costs do the New York State-Living Donor Support Program cover for donors?
The New York State-Living Donor Support Program will reimburse child, child with a disability, dependent adult, and elder care expenses incurred because of the living donation process.
33. How are dependent care reimbursements calculated?
Child care costs are determined in accordance with the regional informal childcare standard rate and child with a disability, dependent adult, and elder care costs are determined in accordance with Living Donor Support Program standard rates.
34. Does the New York State-Living Donor Support Program pay for a donor's pre-existing dependent care expenses?
The New York State-Living Donor Support Program can help cover the costs of alternate care for their dependent while they are unable to provide the care they usually provide themselves. Reimbursement will be provided if the need for dependent care is not previously in place or is greater than what is in place.
35. Are dependent care reimbursements taxable?
It is the donor's responsibility to contact a qualified tax advisor to determine tax liability related to dependent care expenses reimbursement. The New York State-Living Donor Support Program is not responsible for any tax consequence related to dependent care reimbursement.
36. Can I be reimbursed for meals for day trip travel?
A. No. Meals will be reimbursed only when it accompanies overnight travel. The amount received on the first and last day of travel equals 75% of the meals and incidental expenses (M&IE) total.
Ie: Donor travels 7 days, day one of travel is paid at 75% of M&IE rate, days 2-6 are paid at 100% of M&IE rate, day 7 of travel is paid at 75% of M&IE rate.